The Hereditary Neuropathy Foundation has selected historic 3 West Club to hold the first Patient-Centered Charcot-Marie-Tooth Summit on October 6, 2016.
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Courtney
Summit Speaker Spotlight: Gary Barg, The Fearless Caregiver
Those caring for patients living with CMT are invaluable members of our community. Caregivers are on the frontlines every day, helping patients manage their daily struggles and challenges of living with CMT.
The purpose of the HNF Patient-Centered Charcot-Marie-Tooth Summit
The purpose of the summit summit and the value of the PCORI award in making the summit a ‘game changer’ for Charcot-Marie-Tooth research.
Applying for Disability with Hereditary Neuropathy or CMT
Learn how you can apply for disability with Hereditary Neuropathy or CMT.
Top Ten Ways Participating in GRIN Helps Support CMT/IN Research
HNF’s Global Registry for Inherited Neuropathies (GRIN) is one of our initiatives that supports our commitment and dedication to developing treatments and discovering cures for CMT and other INs.
Local Caped Crusaders Lead 2nd Annual Super Hero 5K For Autosomal Dominant Optic Atrophy
On Saturday, April 23, 2016, local caped crusaders joined Jillian for the 2nd Annual Super Hero 5K to help find a cure for Autosomal Dominant Optic Atrophy (ADOA). Over 200 people joined in on the fun of walking or running for a great cause.
A Night To Remember: First Casino Night Event For CMT6
On Thursday April 21, 2016, over 160 Zach supporters gathered for the 1st Casino Night to benefit CMT6!
Lung function and breathing issues with Charcot-Marie-Tooth
HNF wants to help our Inspire members get answers to questions related to Charcot-Marie-Tooth.
Radio interview with Jenny Decker
Radio interview from last week with Jenny Decker about how she is kayaking around the Big Island to raise awareness and funds for a Charcot-Marie-Tooth.
HNF’s New Accomplishments!
10 REASONS TO DONATE TO ALLISON MOORE’S 2016 BIKE RIDE CHALLENGE
Thursday, October 6, 2016: HNF Patient Centered Research Outcomes Summit
The Hereditary Neuropathy Foundation is proud and honored to conduct the first year Patient-Centered Research Outcomes Summit (PCROS) at 3 West Club in New York City on October 6, 2016
Pharnext Opens First U.S. Study Site For Its PLEO-CMT International Pivotal Phase 3 Trial In Charcot-Marie-Tooth Disease Type 1A
French pharmaceutical company Pharnext announced the opening of the first U.S. trial site for its PLEO-CMT pivotal Phase 3 clinical trial of its lead pleodrug PXT-3003 in Charcot-Marie-Tooth Disease Type 1A (CMT1A).
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Canine Companions (5)
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Patient-Focused Research (1)
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Registry (16)
Research (95)
School Outreach Program and Team CMT Kids (1)
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Bike New York (19)
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Spin-a-thon (7)
TCS New York City Marathon (7)
Team CMT Members (61)
The CMT Genie (6)
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Vitaccess (1)
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University of Helsinki (2)
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