HNF has asked Jenny to join us at the Patient-Centered Charcot-Marie-Tooth Summit to participate as a panelist in “Personalized Exercise Prescription.”
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Courtney
Meet Stefanie Sacks CMT Summit Keynote Speaker
The Hereditary Neuropathy Foundation is proud and privileged to introduce Stefanie Sacks, our keynote speaker at the first Patient-Centered Charcot-Marie-Tooth Summit on October 6, 2016 in New York City.
10 Ways Participating In GRIN Helps Support CMT/IN Research
HNF’s Global Registry for Inherited Neuropathies (GRIN) is one of our initiatives that supports our commitment and dedication to developing treatments and discovering cures for CMT and other INs.
Summit Panelist Spotlight: Team CMT Founder Chris Wodke
The Hereditary Neuropathy Foundation’s Team CMT Founder and Manager Chris Wodke is changing the face of Charcot-Marie-Tooth one mile at a time. Chris is an accomplished triathlete, marathon runner, and cyclist.
The CMT Caregiver: Insights From Summit Speaker Gary Barg
HNF is honored to have Gary Barg, noted speaker, author, and publisher on caregiving issues since 1995, speak at the upcoming Patient-Centered Charcot-Marie-Tooth Summit on October 6, 2016.
Dorothy J. Fairman Memorial Travel Scholarship
Travel Scholarships up to $1000 USD available for CMT patients/caregivers to attend HNF’s 2016 Patient-Centered Charcot-Marie-Tooth Summit October 6, 2016
CMT and Exercise
HNF wants to help our Inspire members get answers to questions related to Charcot-Marie-Tooth.
About the Patient-Centered Charcot-Marie-Tooth Summit
The goal of the Patient-Centered Charcot-Marie-Tooth Summit will be to expand the role of patients, caregivers and other stakeholders/
What Do We Mean By “Patient-Centered”?
HNF is planning the first ever Patient-Centered Charcot-Marie-Tooth Summit taking place on October 6, 2016 at the 3 West Club in New York City.
Q&A With Summit Attendee Jim Matthews
Q&A With Summit Attendee Jim Matthews
Headaches and Charcot-Marie-Tooth
One topic that has been addressed is headaches and CMT. Some CMT patients have reported tension headaches from off-balance gait, scoliosis, and neck & spine arthritis.
How To Stay Sun Safe Year Round
The cumulative damage caused by exposure to the sun’s harmful ultraviolet rays (UV) can lead to premature skin aging, damage the eyes and surrounding skin, and raise your risk of skin cancer.
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