Bracing is used in the management Charcot-Marie-Tooth to support and hold a part of the body compromised by muscle weakness, muscular atrophy, sensory impairment. Bracing is also used to help correct skeletal deformity.
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Summit Panelist Spotlight: Renée Arnold
Dr. Arnold is currently President & CEO, Arnold Consultancy & Technology LLC, eadquartered in New York City, and Practice Lead, HEOR, Quorum Consulting, Inc., based in San Francisco, CA
Summit Panelist Spotlight: Brent Baker
With respect to CMT, Dr. Baker’s team has collaborated with Drs. Michael Sereda and Klaus Nave of the Max Planck Institute for Experimental Medicine (MPI) to utilize their CMT1A transgenic rat and established the initial CMT1A rat colony in the United States.
Summit Panelist Spotlight: Dr. Steven Gray
Dr. Steven J. Gray is an Assistant Professor in the Dept. of Ophthalmology, U. of N. Carolina at Chapel Hill.
Summit Panelist Spotlight: Bernadette Scarduzio
Bernadette Scarduzio – a CMT patient and advocate! I reside in Drexel Hill, PA with my 2 dogs.
Summit Panelist Spotlight: John Maddox
John is Founder and Managing Director of Infusion Pharma Consulting LLC, a leading business strategy consultancy focused on the Orphan Drug and Hospital Therapeutics
Summit Panelist Spotlight: Dr. Xinliang Albert Liu
Dr. Liu shares the consensus that CMT is a lesser known disease and more research is needed to shed light on the experiences of patients with CMT.
Summit Panelist Spotlight: Joy Aldrich
After her genetic diagnosis, Joy connected with HNF for advice on AFOs and a letter writing campaign to tell family and friends about her diagnosis.
Summit Speaker Spotlight: Allison Moore
Allison Moore founded HNF in 2001 in an effort to improve the quality of life for people with Charcot-Marie-Tooth.
Summit Speaker Spotlight: Dr. Timothy R. Coté
HNF has invited Dr. Coté to lead the discussion on Public Policy. We will cover issues such as better AFO (leg-bracing) options, fast-tracking drug discoveries and clinical trials, applying for disability benefits, Medicare/Medicaid and services.
Summit Panelist Spotlight: Dr. David Walk
We’ve invited Dr. David Walk to join the panel discussion on “Genotype and Phenotype: Managing Symptoms, The Role of Researchers/Clinicians.”
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