HNF’s initial gene therapy work will focus on CMT type 6, which is caused by a recessive mutation in the C12orf65 gene and is currently no treatment.
Author Archive
Courtney
Rare Neurological Disease Special Report Features CMT and HNF!
ust released, the third annual Rare Neurological Disease Special Report has CMT taking a front-row position with several articles discussing the latest developments in CMT treatments and improving CMT care.
RV Tips and Advice: Rick Cole the CMTrv’er
Thoughts and tips for people considering, or may want to consider, going RV, either part-time or full-time
TD Bank Five boro Tour: May 7, 2017
eighth year of HNF participating as a Charity Partner in the 2017 TD Bank Five Boro Bike Tour
Zumbathon Brigantine, New Jersey: June 10, 2017
Zumbathon and Community Day featuring Marisela Zumba Chic
Set Sail For CMT: Saturday June 17, 2017
On June 17, 2017 in New York City, HNF will be kicking off our inaugural Manhattan sunset cruise for a night filled with food, drinks, music and exclusive auction items.
Disease Awareness Problem
video of Robert’s keynote about CMT going largely unrecognized
Two New Charcot-Marie-Tooth (CMT) Surveys Regarding Orthotics Use and Autonomic Neuropathy Prevalence
Two New Charcot-Marie-Tooth (CMT) Surveys Regarding Orthotics Use and Autonomic Neuropathy Prevalence
Join HNF for Rare Disease Week via Live Streaming Video March 2, 2017
Join HNF for Rare Disease Week via Live Streaming Video
Neurotoxic Rx wallet card
Neurotoxic wallet card.
Tips on Managing Chronic Pain
How to help with chronic pain
“Take A Look At This Heart”
A film about love, sexuality, and the human bond within the disabled community.
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