Amanda Pool shares her experience with the online Inspire CMT Community.
Author Archive
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Q&A with Dakota Reilly Impact of AlterG on Charcot-Marie-Tooth
Learn how this CMT1A patient uses the AlterG treadmill to manage her CMT symptoms.
MightyMan Half Iron Distance Supports HNF
Join HNF at the MightyMan Half Iron Distance in Fort Pond, Montauk, NY October 1st.
Calling All Team CMT Members!
Join Team CMT and be part of an international effort to change the future for those living with CMT!
Setting Sail For CMT: Manhattan Cruise Successfully Raises Research Funds
HNF cast off for our maiden voyage New York City sunset cruise to raise funds for CMT research.
We’re Partnering With The Mighty!
a new partnership with The Mighty
Natural History Study to Support CMT Research
The National Organization for Rare Diseases has awarded HNF funding to build a robust natural history study to support the second most common type of CMT called hereditary neuropathy pressure palsies (HNPP).
Exciting Corporate News: Invitae, A Genetic Information Company, Acquires AltaVoice
Invitae, A Genetic Information Company, Acquires AltaVoice, HNF’s Global Registry for Inherited Neuropathies (GRIN) Platform Host
Q&A with Dave Washabaugh: TD Bank Five Boro Bike Tour Team Member
Q&A with Dave Washabaugh
Calling Everyone With CMT/IN
HNF has launched a new Patient-Reported Research Study to advance therapies for CMT and inherited neuropathies (IN) in an effort to collect comprehensive data for a better understanding of the disease.
Tips for Living with CMT
Living with CMT can be a challenging journey. Here are some helpful tips.
New Collaboration with the University of North Carolina at Chapel Hill and The Jackson Laboratory Addresses Charcot-MarieTooth/Inherited Neuropathy Mutations Using Gene Therapy
HNF’s initial gene therapy work will focus on CMT type 6, which is caused by a recessive mutation in the C12orf65 gene and is currently no treatment.
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Faces of CMT – James (1)
Faces of CMT – Jaxson (7)
Faces of CMT – Zach (18)
Featured (28)
GRIN Patient Registry (39)
HNF Team (10)
Industry (3)
Living with CMT (78)
Medical professionals (2)
Movement Is Medicine (17)
Optic Hereditary Neuropathy (5)
Our Impact (3)
Clinical Trials (21)
PFDD (1)
PFDD Meeting 28SEP2018 (5)
Past Events (35)
Patience Resources (0)
Accessible Travel (4)
Bracing (11)
Breathing (3)
Canine Companions (5)
Cannabis (8)
Caregivers (3)
Dating and Relationships (7)
Emotional and Mental Health (9)
Family Planning (1)
Fashion and Products (1)
Genetic Testing (11)
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Inspire Community (7)
Legal Rights and Benefits (8)
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Newly Diagnosed (7)
Nutrition (3)
Occupational Thearpy (2)
Pain (8)
Podiatry (4)
PT and Exercise (25)
Research and Critical Trials (29)
School & College (6)
Surgery (10)
Telemedicine (1)
Tips and Hacks (2)
Patient-Focused Research (1)
Pediatrics & CMT (10)
Registry (16)
Research (95)
School Outreach Program and Team CMT Kids (1)
Special Events (2)
Bike New York (19)
Other Events (4)
Spin-a-thon (7)
TCS New York City Marathon (7)
Team CMT Members (61)
The CMT Genie (6)
TRIAD (28)
TRIAD – Clinical Trial Readiness (5)
Vitaccess (1)
TRIAD – Research Gifts (0)
University of Helsinki (2)
Veneto (1)
TRIAD – Sponsored Research (0)
Burke Insitute (3)
University of Cambridge (1)
University of Miami (1)
University of San Antonio Texas (1)
TRIAD – Therapeutics (4)
Applied Therapeutics (10)
Pharnext (10)
Rarebase (4)
Types of CMT (1)
CMT Type – CMT1A (22)
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CMT Type – CMT4A GDAP1 (3)
CMT Type – CNTNAP1 (1)
CMT Type – GAN (5)
CMT Type – HDAC6 (1)
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CMT Type – MTRFR-C12orf65 (6)
CMT Type – SORD Deficiency (9)
Upcoming Events (3)
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