Pharnext completed patient enrollment for the international Phase 3 clinical trial of PXT3003, Pharnext’s lead PLEODRUG ©, for treatment of CMT1A.
Author Archive
Courtney
We Care About Research for Hereditary Neuropathy with Liability to Pressure Palsies (HNPP)!
HNPP is the second most common form of CMT/IN and may affect approximately 15,000 in the USA. Help us find a cure today!
Hereditary Neuropathy Foundation Announces Patient-Centered CMT/HNPP Pain Summit
HNF is proud to announce that our annual CMT Summit will include the HNPP community Friday, November 3, 2017, in Cambridge, Massachusetts.
CMT & Balance Webinar
Discuss the balance issues that accompany CMT and review some PT movements to promote improvement.
Q&A with Inspire CMT Community Member Amanda Pool
Amanda Pool shares her experience with the online Inspire CMT Community.
Q&A with Dakota Reilly Impact of AlterG on Charcot-Marie-Tooth
Learn how this CMT1A patient uses the AlterG treadmill to manage her CMT symptoms.
MightyMan Half Iron Distance Supports HNF
Join HNF at the MightyMan Half Iron Distance in Fort Pond, Montauk, NY October 1st.
Calling All Team CMT Members!
Join Team CMT and be part of an international effort to change the future for those living with CMT!
Setting Sail For CMT: Manhattan Cruise Successfully Raises Research Funds
HNF cast off for our maiden voyage New York City sunset cruise to raise funds for CMT research.
We’re Partnering With The Mighty!
a new partnership with The Mighty
Natural History Study to Support CMT Research
The National Organization for Rare Diseases has awarded HNF funding to build a robust natural history study to support the second most common type of CMT called hereditary neuropathy pressure palsies (HNPP).
Exciting Corporate News: Invitae, A Genetic Information Company, Acquires AltaVoice
Invitae, A Genetic Information Company, Acquires AltaVoice, HNF’s Global Registry for Inherited Neuropathies (GRIN) Platform Host
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