HNF will be holding a landmark externally-led Patient-Focused Drug Development Meeting for CMT and INs in Washington, D.C. on Friday, September 28, 2018.
Author Archive
Courtney
CMT & Finances
Disability and financial expert, James Traylor, provided a very informative presentation on the basics of navigating disability benefits and services.
The CMT Community Needs You!
Start the New Year by getting involved and helping HNF conquer CMT. There are many ways you can get involved.
Em-bracing Fashion with Lainie Ishbia
Meet Lainie Ishbia who created Trend-ABLE to empower women with invisible physical disabilities and challenges.
Neurology Reviews® & NORD Publish 2018 Rare Neurological Disease Special Report
The 2018 Rare Neurological Disease Special Report has been published by Neurology Reviews in collaboration with NORD.
CMT Careers: No Piece Of Cake
Sometimes physical challenges can dictate job and career paths.
Meet the 2018 TD Bank Five Boro Bike Tour Team CMT
Here’s a snapshot of the inspiring Team CMT riders and why they are participating in this year’s TD Bank Five Boro Bike Tour.
Breathing Problems? What Do They Mean, Breathing Problems?
Though CMT is rarely fatal, respiratory complications are one of the ways it’s possible to die from CMT.
Muscle Cramp Study Underway
In October 2017, Flex Pharma initiated a Phase 2 study of CMT, referred to as the COMMIT study.
What Is An Externally-Led PFDD Meeting?
PFDD meetings integrate patient insights into the drug development process.
10 Reasons To Join The Inspire CMT Community
10 Reasons To Join The Inspire CMT Community Today!
New Executive Director for HNF: Courtney Hollett
HNF is pleased to announce that Courtney Hollett has been named Executive Director.
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Webinars – Genetic Testing (1)
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Webinars – Newly Diagnosed (2)
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Movement Is Medicine (17)
Optic Hereditary Neuropathy (5)
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Clinical Trials (21)
PFDD (1)
PFDD Meeting 28SEP2018 (5)
Past Events (35)
Patience Resources (0)
Accessible Travel (4)
Bracing (11)
Breathing (3)
Canine Companions (5)
Cannabis (8)
Caregivers (3)
Dating and Relationships (7)
Emotional and Mental Health (9)
Family Planning (1)
Fashion and Products (1)
Genetic Testing (11)
Home Accessibility (2)
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Inspire Community (7)
Legal Rights and Benefits (8)
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Newly Diagnosed (7)
Nutrition (3)
Occupational Thearpy (2)
Pain (8)
Podiatry (4)
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Research and Critical Trials (29)
School & College (6)
Surgery (10)
Telemedicine (1)
Tips and Hacks (2)
Patient-Focused Research (1)
Pediatrics & CMT (10)
Registry (16)
Research (95)
School Outreach Program and Team CMT Kids (1)
Special Events (2)
Bike New York (19)
Other Events (4)
Spin-a-thon (7)
TCS New York City Marathon (7)
Team CMT Members (61)
The CMT Genie (6)
TRIAD (28)
TRIAD – Clinical Trial Readiness (5)
Vitaccess (1)
TRIAD – Research Gifts (0)
University of Helsinki (2)
Veneto (1)
TRIAD – Sponsored Research (0)
Burke Insitute (3)
University of Cambridge (1)
University of Miami (1)
University of San Antonio Texas (1)
TRIAD – Therapeutics (4)
Applied Therapeutics (10)
Pharnext (10)
Rarebase (4)
Types of CMT (1)
CMT Type – CMT1A (22)
CMT Type – CMT1B (2)
CMT Type – CMT1X (3)
CMT Type – CMT2A (9)
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CMT Type – CMT4A GDAP1 (3)
CMT Type – CNTNAP1 (1)
CMT Type – GAN (5)
CMT Type – HDAC6 (1)
CMT Type – HNPP (3)
CMT Type – MTRFR-C12orf65 (6)
CMT Type – SORD Deficiency (9)
Upcoming Events (3)
Ways to Give (4)
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