Join us on Saturday, April 6th at 7:00pm at CoolMess Roslyn, New York. All proceeds will go towards the TRIAD program.
Author Archive
Courtney
Accessible Travel
Join us with Daniel Keebler of accessibleGO.com a wonderful website connecting the disability community with accessible travel across the country and beyond.
StarWise Therapeutics & HNF Form A Strategic Alliance to Bring a NextGen HDAC6 Drug Therapy to CMT2A (MFN2) Patients
HNF has been committed to funding HDAC inhibitor research since 2014.
CMT On The Cloud
HNF takes action and joins genomics revolution for CMT and rare forms of IN.
HNF Hears You
The HNF 2018 Patient-Centered Behavioral Health Summit was one-of-kind: HNF launched a new curriculum.
Exciting News For The CMT Patient Community
Exciting news for the CMT patient community with the first potential treatment ever!
PFDD Meeting Sessions
Welcome and Opening Remarks Overview: What is CMT? - Michael Shy, MD Overview: What is CMT? - Dr....
HNF & Athena Diagnostics Form Strategic Alliance
They will collaborate on research and provide access to genetic testing for CMT.
HNF On The Road
HNF presenting and attending prestigious conferences worldwide.
HNF Launches Online Clinical Study
HNF launches GRIN with 4 online clinical studies that are important as we continue with our therapy development pipelines.
HNF Partners with True Reply, the Future of Data Collection: Voice Activated Technology (VAT)
True Reply’s Voice Activated Technology is an accessible and innovative new platform that captures the patient’s experience with CMT in their own words.
The Externally-led Patient-Focused Drug Development (PFDD) Meeting Was A Huge Success!
HNF successfully executed the Externally-led PFDD Meeting for the FDA on September 28th, 2018.
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Faces of CMT – Bernadette (9)
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Faces of CMT – Grace (18)
Faces of CMT – HELP Fund (8)
Faces of CMT – HNPP Fund (3)
Faces of CMT – James (1)
Faces of CMT – Jaxson (7)
Faces of CMT – Zach (18)
Featured (28)
GRIN Patient Registry (39)
HNF Team (10)
Industry (3)
Living with CMT (78)
Medical professionals (2)
Movement Is Medicine (17)
Optic Hereditary Neuropathy (5)
Our Impact (3)
Clinical Trials (21)
PFDD (1)
PFDD Meeting 28SEP2018 (5)
Past Events (35)
Patience Resources (0)
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Bracing (11)
Breathing (3)
Canine Companions (5)
Cannabis (8)
Caregivers (3)
Dating and Relationships (7)
Emotional and Mental Health (9)
Family Planning (1)
Fashion and Products (1)
Genetic Testing (11)
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Inspire Community (7)
Legal Rights and Benefits (8)
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Pain (8)
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Surgery (10)
Telemedicine (1)
Tips and Hacks (2)
Patient-Focused Research (1)
Pediatrics & CMT (10)
Registry (16)
Research (95)
School Outreach Program and Team CMT Kids (1)
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Spin-a-thon (7)
TCS New York City Marathon (7)
Team CMT Members (61)
The CMT Genie (6)
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University of Helsinki (2)
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University of San Antonio Texas (1)
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