We speak with Ability360 Program Manager, Brielle Carter about her adaptive sports and recreation center specially designed for people with disabilities.
Author Archive
Courtney
Mini Film “Date-Able”
What goes through the mind of a woman living with Charcot-Marie-Tooth as she braves the world of dating?
Help Support HNF with the RoundUp app
HNF has partnered with an app called RoundUp that allows users to donate the change to support CMT research.
HNF Announces The Second Pediatric Center of Excellence for CMT
HNF’s 2nd Pediatric Center of Excellence for CMT is located at the Ann and Robert H. Lurie Children’s Hospital of Chicago.
What Is Fast Track?
The FDA has awarded Fast Track designation to two drugs currently in development for CMT.
Movement is Medicine™ Summit
HNF is excited to announce the Movement is Medicine™ Summit, being held at Ability360 Sports & Fitness Center in Phoenix, AZ, on November 8-9.
Top 10 Reasons to Attend HNF’s Movement is Medicine™ Summit
Join us at HNF’s Movement is Medicine™ Summit November 8-9, 2019, in Phoenix, Arizona.
Meet Cathy Power, CMT Patient that Plans to Attend Movement is Medicine™ Summit in November
Read more about this CMT patient and what interests her about attending this year’s HNF Movement is Medicine Summit™
HNF Featured in Rare Neurological Disease Special Report
HNF is proud to announce that for the fifth year in a row, we have been featured in the annual Rare Neurological Disease Special Report.
2019 Million Dollar Bike Ride
HNF will be participating in the Million Dollar Bike Ride for the 1st time this year on Saturday, June 8th in Philadelphia, PA.
COVID19 & CMT
Join the HNF team as we navigate critical information on the COVID-19 as it pertains to the CMT community, especially those who live with existing respiratory weakness
Healing from the Inside Out – Self Love & CMT
In this webinar, we dive deep into the topic of self-love with Author, Occupational Therapist, and Healing Activator Laura Mayer.
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Faces of CMT – Bernadette (9)
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Faces of CMT – HELP Fund (8)
Faces of CMT – HNPP Fund (3)
Faces of CMT – James (1)
Faces of CMT – Jaxson (7)
Faces of CMT – Zach (18)
Featured (28)
GRIN Patient Registry (39)
HNF Team (10)
Industry (3)
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Medical professionals (2)
Movement Is Medicine (17)
Optic Hereditary Neuropathy (5)
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Clinical Trials (21)
PFDD (1)
PFDD Meeting 28SEP2018 (5)
Past Events (35)
Patience Resources (0)
Accessible Travel (4)
Bracing (11)
Breathing (3)
Canine Companions (5)
Cannabis (8)
Caregivers (3)
Dating and Relationships (7)
Emotional and Mental Health (9)
Family Planning (1)
Fashion and Products (1)
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Telemedicine (1)
Tips and Hacks (2)
Patient-Focused Research (1)
Pediatrics & CMT (10)
Registry (16)
Research (95)
School Outreach Program and Team CMT Kids (1)
Special Events (2)
Bike New York (19)
Other Events (4)
Spin-a-thon (7)
TCS New York City Marathon (7)
Team CMT Members (61)
The CMT Genie (6)
TRIAD (28)
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Vitaccess (1)
TRIAD – Research Gifts (0)
University of Helsinki (2)
Veneto (1)
TRIAD – Sponsored Research (0)
Burke Insitute (3)
University of Cambridge (1)
University of Miami (1)
University of San Antonio Texas (1)
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Applied Therapeutics (10)
Pharnext (10)
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CMT Type – CNTNAP1 (1)
CMT Type – GAN (5)
CMT Type – HDAC6 (1)
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CMT Type – MTRFR-C12orf65 (6)
CMT Type – SORD Deficiency (9)
Upcoming Events (3)
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