Join Estela & Amin as they discuss navigating online dating and relationships with CMT.
Author Archive
Courtney
PFDD Meeting, September 28, 2018
On Friday, September 28, 2018 HNF hosted an Externally-led Patient Focused Drug Development (PFDD) Meeting. In attendance were patients, caregivers, Government Officials, Healthcare Providers, Industry Representatives, and Payors.
Jaxson’s Spooky Shoot 2020
Thank you to everyone who attended this family-friendly event with costumes. Check out the photo gallery!
Telemedicine
Join us as we dive deeper into the emerging practice of telemedicine with Neurologist Dr. Raghav Govindarajan of UM Healthcare.
Microcirculation
Improve blood flow and learn about this holistic approach to increase oxygen and decrease toxins.
Work from home NTI @Home
HNF is thrilled to present a new webinar with NTI@Home, a non-profit dedicated to providing people with disabilities and their caregivers with free virtual job training and placement
10yo Addie sings her version of Try by Pink to raise awareness of CMT
Addie rewrote Try by Pink into a song about her disease and recorded it to raise awareness.
A Successful Movement is Medicine™ Summit
We are grateful to all the patients who participated in this groundbreaking event! The wonderful feedback we have received makes all of the hard work and planning well worth it.
Marvin, my Service Dog
Now thanks to Marvin, my Canine Companions for IndependenceⓇ service dog, my life is so much fuller.
A Successful Movement is Medicine™ Summit
“Like meeting family you never knew you had, but always wanted.”
CMT&Me Study
There’s been little research to date into how CMT affects the lives of patients…
PNS, It’s A Global Effort
Where do the top CMT researchers in the world unite to share leading-edge research? The Peripheral Nerve Society (PNS) meeting!
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Webinars – Breathing (1)
Webinars – Canine Companions (1)
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Webinars – Inclusive Employment (3)
Webinars – Inspire Community (1)
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Webinars – Surgery (2)
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Faces of CMT – Bernadette (9)
Faces of CMT – CMT4A (7)
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Faces of CMT – HELP Fund (8)
Faces of CMT – HNPP Fund (3)
Faces of CMT – James (1)
Faces of CMT – Jaxson (7)
Faces of CMT – Zach (18)
Featured (32)
GRIN Patient Registry (39)
HNF Team (10)
Industry (5)
Living with CMT (78)
Media (1)
Medical professionals (2)
Movement Is Medicine (17)
Optic Hereditary Neuropathy (5)
Our Impact (3)
Clinical Trials (23)
PFDD (1)
PFDD Meeting 28SEP2018 (5)
Past Events (35)
Patience Resources (0)
Accessible Travel (4)
Bracing (11)
Breathing (3)
Canine Companions (5)
Cannabis (8)
Caregivers (3)
Dating and Relationships (7)
Emotional and Mental Health (9)
Family Planning (1)
Fashion and Products (2)
Genetic Testing (11)
Home Accessibility (2)
Inclusive Employment (3)
Inspire Community (7)
Legal Rights and Benefits (8)
Neurotoxic Drugs (4)
Newly Diagnosed (8)
Nutrition (5)
Occupational Thearpy (2)
Pain (8)
Podcasts (2)
Podiatry (4)
PT and Exercise (25)
Research and Critical Trials (34)
School & College (6)
Surgery (10)
Telemedicine (1)
Tips and Hacks (2)
Patient-Focused Research (3)
Pediatrics & CMT (12)
Registry (16)
Research (98)
School Outreach Program and Team CMT Kids (1)
Special Events (2)
Bike New York (19)
Other Events (4)
Spin-a-thon (7)
TCS New York City Marathon (7)
Team CMT Members (61)
The CMT Genie (6)
TRIAD (29)
TRIAD – Clinical Trial Readiness (5)
Vitaccess (1)
TRIAD – Research Gifts (0)
University of Helsinki (2)
Veneto (1)
TRIAD – Sponsored Research (0)
Burke Insitute (3)
University of Cambridge (1)
University of Miami (1)
University of San Antonio Texas (1)
TRIAD – Therapeutics (4)
Applied Therapeutics (10)
Pharnext (10)
Rarebase (4)
Types of CMT (1)
CMT Type – CMT1A (22)
CMT Type – CMT1B (2)
CMT Type – CMT1X (3)
CMT Type – CMT2A (9)
CMT Type – CMT2C (5)
CMT Type – CMT4A GDAP1 (3)
CMT Type – CNTNAP1 (1)
CMT Type – GAN (5)
CMT Type – HDAC6 (1)
CMT Type – HNPP (3)
CMT Type – MTRFR-C12orf65 (6)
CMT Type – SORD Deficiency (9)
Upcoming Events (2)
Ways to Give (4)
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