CATEGORIES: Advocacy

US Senator Kirsten Gillibrand Recognizes Charcot-Marie-Tooth Awareness Month

by | Sep 25, 2015 | 0 comments

US Senator Kirsten Gillibrand

US Senator Kirsten Gillibrand

I met New York Senator Kirsten E. Gillibrand at an event in NYC two years ago.  Impressed with her history of advocacy, I reached out to the Senator about The Hereditary Neuropathy Foundation and our ongoing efforts to find a cure for Charcot-Marie-Tooth disease.

Senator Gillibrand has graciously shown her recognition of Charcot-Marie-Tooth Awareness Month by sharing a letter about HNF’s mission, the importance of greater awareness, and the need for increased research and clinical trials:

“It is my hope that our collective advocacy and greater awareness will increase global awareness of this disease.”

Advocacy is crucial to the success of our strategic initiatives to find a cure for CMT. I would like to thank the Senator on behalf of HNF and the entire CMT community for her generous support.

To view the Senator’s letter, click HERE.

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