Driving
CMT Research
with the
Patient’s Voice
With your help support love
nothing is impossible!

Drive Research
Drive Research
Turn your symptoms into science
Join Team CMT
Join Team CMT
Pledge Monthly
Pledge Monthly
Start your Monthly Gift of $10 today or consider the many other ways to give!
Research CMT
Research CMT
HNF has been conducting patient-focused research dating back to 2007.
Gift a Birthday
Gift a Birthday
Celebrate your birthday with a purpose! Start a Birthday CMT Fundraiser.
2025 CMT Clinical Trial Readiness Summit
April 24-26 – Reserve Your Summit Spot!
Experience the 2025 HNF CMT Summit & Wellness Retreat in Nashville, TN, April 24-26! Dive into groundbreaking research and clinical trial readiness while rejuvenating with wellness workshops, fitness activities, and community connection.
Welcome To The
Hereditary Neuropathy Foundation
Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support people living with CMT and their families with critical information to improve quality of life, and fund research that will lead to treatments and cures.
What is CMT?
Genetic Testing
Patient Resources
Pediatrics & CMT
Newsletter
Join for notifications on events, campaigns, & news
About HNF
Founded in the early 2000’s, HNF developed the Therapeutic Research in Accelerated Discovery (TRIAD) as a collaborative effort with academia, government, and industry to develop treatments for CMT.
In accordance with the FDA’s patient-focused drug development guidance for enhancing the incorporation of the patient’s voice in medical product development and regulatory decision making, HNF has developed a regulatory strategy to support FDA Guidelines to engage with industry early on and assist with collecting and submitting robust and meaningful patient experience data, and other relevant information from patients and caregivers, such as identifying what is important to patients.
HNF is actively committed to increasing awareness and accurate diagnosis of CMT and providing patients and families with critical information to improve quality of life.
LATEST

Organileaf CBD & CMT Symptoms
CBD Benefits for CMT Patients Ryan Whitman and Peter Durante shared their personal journeys, including Ryan’s experience as a rare disease patient with symptoms similar to CMT, such as fatigue, weakness, and pain. Their passion for wellness led to the founding of...

Become a Certified CMT-FOM Clinical Evaluator at the HNF Clinical Trial Readiness Summit
Become a Certified CMT-FOM Clinical Evaluator at the HNF Clinical Trial Readiness Summit The Hereditary Neuropathy Foundation (HNF) is proud to offer an exclusive opportunity to become one of the first Fully Certified CMT-FOM Clinical Evaluators at the upcoming HNF...

NEW! Meet the CMT Dream Team!
HNF has BIG News! The CMT Dream Team Ambassadors are...

TD Bank Five Boro Bike Tour
Sunday, May 4, 2025 ride for Team CMT

MDA Awards Grant to HNF for Groundbreaking Digital Wearable Study on CMT!
Exciting news for the Charcot-Marie-Tooth (CMT) community! The Hereditary Neuropathy Foundation (HNF) has been awarded an Advocacy Collaboration Grant from the Muscular Dystrophy Association (MDA) to further its groundbreaking work in CMT research. This funding will...

7 Reasons You Can’t Miss the Nashville CMT Summit
Mark your calendars for April 24–26, 2025, because the Nashville CMT Summit is bringing the ultimate blend of knowledge, community, and fun! Here are 7 reasons you absolutely need to be there: Test & Try Mobility Aids: Explore the latest tools to keep you moving...

Join Our CMT Summit Q&A Zoom
Have questions about HNF’s upcoming CMT Summit + Patient Retreat? We’re here to help! Join Us January 29th from 12:00pm – 1:30pm ET.

Dr. Kayla Cornett to Present Groundbreaking CMT Wearable Sensor Study at MDA Clinical and Scientific Conference
On March 19th, at the MDA Clinical and Scientific Conference in Dallas, TX, Dr. Cornett will present exciting findings from the wearable sensor study conducted in collaboration with HNF’s partner, BioSensics. This innovative research highlights the potential of...
Featured

Become a Certified CMT-FOM Clinical Evaluator at the HNF Clinical Trial Readiness Summit
Become a Certified CMT-FOM Clinical Evaluator at the HNF Clinical Trial Readiness Summit The Hereditary Neuropathy Foundation (HNF) is proud to offer an exclusive opportunity to become one of the first Fully Certified CMT-FOM Clinical Evaluators at the upcoming HNF...

NEW! Meet the CMT Dream Team!
HNF has BIG News! The CMT Dream Team Ambassadors are...

MDA Awards Grant to HNF for Groundbreaking Digital Wearable Study on CMT!
Exciting news for the Charcot-Marie-Tooth (CMT) community! The Hereditary Neuropathy Foundation (HNF) has been awarded an Advocacy Collaboration Grant from the Muscular Dystrophy Association (MDA) to further its groundbreaking work in CMT research. This funding will...

7 Reasons You Can’t Miss the Nashville CMT Summit
Mark your calendars for April 24–26, 2025, because the Nashville CMT Summit is bringing the ultimate blend of knowledge, community, and fun! Here are 7 reasons you absolutely need to be there: Test & Try Mobility Aids: Explore the latest tools to keep you moving...
Featured Webinars

Webinar: Making Sense & Science of CMT Symptoms
How do we know if our symptoms are Charcot-Marie-Tooth Disease related, and how can we drive research to better answer this question?

CMT THRIVE Webinar – Cannabis & Neuropathy Webinar
Cannabis can be a safe and effective tool to reduce symptoms of neuropathy and improve patient quality of life.

Active Hands
Hear from Rob Smith, Inventor and Director of Active Hands and learn about these life-impacting products designed especially for people living with reduced hand function.

CMT-Connect Pain Webinar
New CMT-Connect Webinar Pain Series will focus on a particular type of pain, its common causes, available treatments and future treatments on the horizon.
UPCOMING EVENTS

TD Bank Five Boro Bike Tour
Sunday, May 4, 2025 ride for Team CMT

2025 HNF CMT Summit & Wellness Retreat
Experience the 2025 HNF CMT Summit & Wellness Retreat in Nashville, TN, April 24-26!