IMPACT THAT MATTERS

Driving
CMT Research
with the
Patient’s Voice

With your help support love
nothing is impossible!

Drive Research

Drive Research

Turn your symptoms into science

Join Team CMT

Join Team CMT

Join the movement to make a difference for those living with CMT

Pledge Monthly

Pledge Monthly

Start your Monthly Gift of $10 today or consider the many other ways to give!

Research CMT

Research CMT

HNF has been conducting patient-focused research dating back to 2007.

Gift a Birthday

Gift a Birthday

Celebrate your birthday with a purpose! Start a Birthday CMT Fundraiser.

Nashville Sunset

2025 CMT Clinical Trial Readiness Summit

April 24-26 – Reserve Your Summit Spot!

Experience the 2025 HNF CMT Summit & Wellness Retreat in Nashville, TN, April 24-26! Dive into groundbreaking research and clinical trial readiness while rejuvenating with wellness workshops, fitness activities, and community connection.

Allison and Daniel Cohen

Welcome To The
Hereditary Neuropathy Foundation

Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support people living with CMT and their families with critical information to improve quality of life, and fund research that will lead to treatments and cures.

What is CMT?

Genetic Testing

Patient Resources

Pediatrics & CMT

Newsletter

Join for notifications on events, campaigns, & news

About HNF

Founded in the early 2000’s, HNF developed the Therapeutic Research in Accelerated Discovery (TRIAD) as a collaborative effort with academia, government, and industry to develop treatments for CMT.

In accordance with the FDA’s patient-focused drug development guidance for enhancing the incorporation of the patient’s voice in medical product development and regulatory decision making, HNF has developed a regulatory strategy to support FDA Guidelines to engage with industry early on and assist with collecting and submitting robust and meaningful patient experience data, and other relevant information from patients and caregivers, such as identifying what is important to patients.

HNF is actively committed to increasing awareness and accurate diagnosis of CMT and providing patients and families with critical information to improve quality of life.

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From Our Blog

LATEST

Organileaf CBD & CMT Symptoms

Organileaf CBD & CMT Symptoms

CBD Benefits for CMT Patients Ryan Whitman and Peter Durante shared their personal journeys, including Ryan’s experience as a rare disease patient with symptoms similar to CMT, such as fatigue, weakness, and pain. Their passion for wellness led to the founding of...

7 Reasons You Can’t Miss the Nashville CMT Summit

7 Reasons You Can’t Miss the Nashville CMT Summit

Mark your calendars for April 24–26, 2025, because the Nashville CMT Summit is bringing the ultimate blend of knowledge, community, and fun! Here are 7 reasons you absolutely need to be there: Test & Try Mobility Aids: Explore the latest tools to keep you moving...

Join Our CMT Summit Q&A Zoom

Join Our CMT Summit Q&A Zoom

Have questions about HNF’s upcoming CMT Summit + Patient Retreat? We’re here to help! Join Us January 29th from 12:00pm – 1:30pm ET.

Featured

7 Reasons You Can’t Miss the Nashville CMT Summit

7 Reasons You Can’t Miss the Nashville CMT Summit

Mark your calendars for April 24–26, 2025, because the Nashville CMT Summit is bringing the ultimate blend of knowledge, community, and fun! Here are 7 reasons you absolutely need to be there: Test & Try Mobility Aids: Explore the latest tools to keep you moving...

Featured Webinars

Active Hands

Active Hands

Hear from Rob Smith, Inventor and Director of Active Hands and learn about these life-impacting products designed especially for people living with reduced hand function.

CMT-Connect Pain Webinar

CMT-Connect Pain Webinar

New CMT-Connect Webinar Pain Series will focus on a particular type of pain, its common causes, available treatments and future treatments on the horizon.

UPCOMING EVENTS